I was thinking about all the years I have lived with diabetes. There are so many things I have learnt, so many questions people have asked me, (some total strangers). There are also so many things that I think should be loud and proud about diabetes, but they are not.
So I thought why not share these thoughts, get them out there so people can hear them.
Here they are.
Life is short, don’t let diabetes ruin it.
It is horrible that you got diabetes, but it gets better, so hang in there.
YES I CAN EAT THAT!
Fingers can take A LOT of pricks and I don’t really care if they have black spots.
I don’t wash my hands before every blood glucose test, so shoot me.
Sucking your finger after a blood test is so totally normal to me that I did not notice the check-out chick looking strangely at me as I sucked my little pinky after checking in line.
Insulin is simply a marvel – and people everywhere should have access to it. It is a crime that some children in the world with type 1 diabetes do not…..
Any food will do in a hypo storm but some things taste like heaven.
NO I AM NOT HYPO BACK OFF.
Yes, when you are young sex can lead to a hypo. Now, with all the children in the house, that is never a problem.
YES counting carbohydrates is the centre of my world.
No it is not a pager, it is an Insulin Pump.
NO I will not take it off when I am going through your x-ray machine at the airport and NO you do not need to bomb check it.
Sometimes I change my pump set when I realise it is hurting a little, or it looks oddly red….does that make me a bad person – No.
And guess what, sometimes I put in a new reservoir and I KEEP THE SAME LINE.
I did not eat too much sugar as a child.
It was not my parent’s fault I got diabetes.
My children don’t have diabetes – I hope they never do.
I guesstimate carbohydrates sometimes and I don’t always get it right.
Sometimes I don’t know what to do, even after 33 years.
I have sore shoulders from lugging around all the diabetes crap I have to take with me and I hate that lack of freedom.
I have sore shoulders because stupid diabetes gave me frozen ones and they don’t get totally better.
Sometimes when I realise how reliant I am on machines and batteries and technology, I freak out a little bit.
I don’t think there will be a cure in my lifetime, although I hope there will be.
I love. I am loved. I have good days. I have not so good days. I laugh. I cry. I think, A LOT. I do, A LOT.
I know how hard it can be to wake up with a screaming high blood glucose and not know why and to spend the entire day trying to get it down, only to find you crash to the other end and have to deal with the crazy, mixed up, shivering, shaking hell of a hypo.
I know diabetes messes with your head, that we all need someone to talk to sometimes, that we all need someone who gets us. That we are all human.
And at the end of the day we are all filling the days. Diabetes makes for much fuller days.
There are so many more things to think about, to consider, to manage and to plan.
But then there are all those amazing people you meet, things you learn about yourself and your body.